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dc.contributor.author Krämer, Susanne
dc.contributor.author Lucas, James
dc.contributor.author Gamboa, Francisca
dc.contributor.author Peñarrocha Diago, Miguel
dc.contributor.author Peñarrocha Oltra, David
dc.contributor.author Guzmán-Letelier, Marcelo
dc.contributor.author Paul, Sanchit
dc.contributor.author Molina, Gustavo
dc.contributor.author Sepúlveda, Lorena
dc.contributor.author Araya, Ignacio
dc.contributor.author Soto, Rubén
dc.contributor.author Arriagada, Carolina
dc.contributor.author Lucky, Anne W.
dc.contributor.author Mellerio, Jemima E.
dc.contributor.author Cornwall, Roger
dc.contributor.author Alsayer, Fatimah
dc.contributor.author Schilke, Reinhard
dc.contributor.author Antal, Mark Adam
dc.contributor.author Castrillón, Fernanda
dc.contributor.author Paredes, Camila
dc.contributor.author Serrano, Maria Concepción
dc.contributor.author Clark, Victoria
dc.date.accessioned 2024-09-26T00:43:57Z
dc.date.available 2024-09-26T00:43:57Z
dc.date.issued 2020-11
dc.identifier.issn 0275-1879
dc.identifier.uri https://repositorio.uss.cl/handle/uss/13299
dc.description Publisher Copyright: © 2020 The Authors. Special Care in Dentistry published by Special Care Dentistry Association and Wiley Periodicals LLC
dc.description.abstract Background: Inherited epidermolysis bullosa (EB) is a genetic disorder characterized by skin fragility and unique oral features. Aims: To provide (a) a complete review of the oral manifestations in those living with each type of inherited EB, (b) the current best practices for managing oral health care of people living with EB, (c) the current best practices on dental implant-based oral rehabilitation for patients with recessive dystrophic EB (RDEB), and (d) the current best practice for managing local anesthesia, principles of sedation, and general anesthesia for children and adults with EB undergoing dental treatment. Methods: Systematic literature search, panel discussion including clinical experts and patient representatives from different centers around the world, external review, and guideline piloting. Results: This article has been divided into five chapters: (i) general information on EB for the oral health care professional, (ii) systematic literature review on the oral manifestations of EB, (iii) oral health care and dental treatment for children and adults living with EB—clinical practice guidelines, (iv) dental implants in patients with RDEB—clinical practice guidelines, and (v) sedation and anesthesia for adults and children with EB undergoing dental treatment—clinical practice guidelines. Each chapter provides recommendations on the management of the different clinical procedures within dental practice, highlighting the importance of patient-clinician partnership, impact on quality of life, and the importance of follow-up appointments. Guidance on the use on nonadhesive wound care products and emollients to reduce friction during patient care is provided. Conclusions: Oral soft and hard tissue manifestations of inherited EB have unique patterns of involvement associated with each subtype of the condition. Understanding each subtype individually will help the professionals plan long-term treatment approaches. en
dc.language.iso eng
dc.relation.ispartof vol. 40 Issue: no. S1 Pages: 3-81
dc.source Special Care in Dentistry
dc.title Clinical practice guidelines : Oral health care for children and adults living with epidermolysis bullosa en
dc.type Artículo
dc.identifier.doi 10.1111/scd.12511
dc.publisher.department Facultad de Odontología
dc.publisher.department Facultad de Odontología y Ciencias de la Rehabilitación


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