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dc.contributor.author Jean Gajardo, J.
dc.contributor.author Rubén Alvarado, M.
dc.contributor.author Andrea Slachevsky, C.
dc.date.accessioned 2024-09-26T00:53:58Z
dc.date.available 2024-09-26T00:53:58Z
dc.date.issued 2021-09
dc.identifier.issn 0034-7388
dc.identifier.uri https://repositorio.uss.cl/handle/uss/13982
dc.description Publisher Copyright: © 2021 Sociedad de Neurologia Psiquiatria y Neurocirugia. All rights reserved.
dc.description.abstract Introduction: Communicating the diagnosis of dementia is a medical challenge. Despite the the patients' right to be informed of their diagnosis, diagnostic disclosure is globally underperformed. In Chile, previous research has addressed the implications of diagnosis from the perspectives of families and family caregivers, but the perspectives and implications from the patients' perspectives remain unknown. Objective: To describe the experiences of patients following the diagnosis of dementia. Material and methods: Qualitative study. Interviews were performed to 11 individuals who had received the diagnosis of early-stage dementia of the Alzheimer's type, 5 women and 6 men, average age 70 years old (64-82). Interviews transcripts were analyzed using content analysis with open coding, using software NVivo 11.0 Pro. Results: The following five generic categories were produced from the interpretation of interviews to describe the experience of patients after being informed of a diagnosis of dementia: the enabling role of families, being informed about dementia, self-stigma, ambivalence on sharing the diagnosis, and coping strategies. Conclusions: Findings report specific unmet needs of patients who have been communicated of the diagnosis of dementia of the Alzheimer's type. Suggestions are presented to inform local health care and social support teams that face the challenge of developing interventions to support people with dementia and their families. en
dc.language.iso spa
dc.relation.ispartof vol. 59 Issue: no. 3 Pages: 185-196
dc.source Revista Chilena de Neuro-Psiquiatria
dc.title Experiencias luego del diagnóstico de demencia : aportes desde la perspectiva de los pacientes es
dc.title.alternative Experiences following the diagnosis of dementiaContributions from the patients' perspective en
dc.type Artículo
dc.identifier.doi 10.4067/S0717-92272021000300185
dc.publisher.department Facultad de Ciencias de la Salud
dc.publisher.department Facultad de Ciencias para el Cuidado de la Salud


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